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Nicole Bajdek

Pronouns

She/Her/Hers

Job Title

Research Assistant II

Academic Rank

Department

Medicine

Authors

Nicole Bajdek, Sarah Everhart Skeels, Nancy Latham, Thomas Storer

Principal Investigator

Thomas Storer

Research Category: Other

Tags

SCI-Lynx: Development of a Physical Activity Social Network App for People with Spinal Cord Injury (SCI)

Scientific Abstract

Mobile health applications have the potential to encourage increased physical activity and social connectedness, but existing apps are not adapted to address the needs and interests of people living with SCI who often experience physical inactivity and social isolation. Aim: To develop a novel physical activity social network app (SCI-Lynx) for people with SCI through a user-centered iterative design process. Online focus group interviews were led by a study investigator living with SCI. Sessions were held with people with SCI (n=19) who were diverse in age, sex, race, ethnicity, level of and time since injury. A standardized interview guide explored participants’ physical activity, social support, and technology experiences. SCI-Lynx screens were presented to solicit reactions to app content, design, usability, and overall impressions. Recommendations were compiled and implemented following each session. Participants recommended several content, design, and usability modifications and endorsed the potential for the app to help support users in making connections with others, finding shared activities and relevant resources. Substantial and meaningful recommendations were gained and implemented using consensus feedback from a diverse group of people with SCI. SCI-Lynx has the potential to help address physical inactivity and social isolation among people with SCI.

Lay Abstract

Mobile health applications have the potential to encourage increased physical activity and social connectedness, but existing apps are not adapted to address the needs and interests of people living with SCI who often experience physical inactivity and social isolation. The aim was to develop a novel physical activity social network app, called SCI-Lynx, for people with SCI through a user-centered iterative design process. Online focus group interviews were led by a study investigator living with SCI. Sessions were held with 19 people with SCI who were diverse in age, sex, race, ethnicity, level of and time since injury. A standardized interview guide explored participants’ physical activity, social support, and technology experiences. SCI-Lynx screens were presented to solicit reactions to app content, design, usability, and overall impressions. Recommendations were compiled and implemented following each session. Participants recommended several content, design and usability modifications and endorsed the potential for the app to help support users in making connections with others, finding shared activities and relevant resources. Substantial and meaningful recommendations were gained and implemented using consensus feedback from a diverse group of people with SCI. SCI-Lynx has the potential to help address physical inactivity and social isolation among people with SCI.

Clinical Implications

SCI-Lynx may assist in positively addressing the consequences of physical inactivity and social isolation among people with SCI. To our knowledge, this is the first mobile app that specifically addresses physical inactivity, social isolation, and loneliness in people with SCI.