Implementing PROMs into routine breast cancer care

Principal Investigator: Andrea Pusic

Authors: Joanna O’Gorman, BS; Elena Tsangaris, PhD; Rakasa Pattanaik, BS; Dany Thorpe Huerta, MBI, AB; Ellen Kim, MD, MPH; Esther Moberg, MPH; George Liang, BS; Maria Edelen, PhD; Andrea Pusic, MD, MHS
Lay Abstract

Dr. Andrea Pusic and her team at the Patient-Reported Outcomes, Value, and Experience (PROVE) Center recently developed imPROVE Breast Cancer Care (imPROVE), consisting of a patient-facing mobile application and clinician dashboards. The mobile application offers a wealth of patient resources and links to trusted communities, while the clinician dashboard provides graphs and feedback about individual patient data. In June 2021, imPROVE was implemented within the Division of Plastic and Reconstructive Surgery at Brigham and Women’s Hospital and the Breast Oncology Program at Dana- Farber Cancer Institute. imPROVE has been widely accepted by patients and clinicians, and we have since enrolled over 600 patients across four clinical sites and 16 clinicians.

Scientific Abstract

Patient-reported outcome measures (PROMs) are tools that enable the patients’ voice in the evaluation of patient outcomes and care quality. A significant barrier to implementing PROMs into clinical care is the lack of a sophisticated platform to collect and interpret these data. To solve this problem, Dr. Andrea Pusic and her team at the Patient-Reported Outcomes, Value, and Experience (PROVE) Center recently developed an innovative platform called imPROVE Breast Cancer Care (imPROVE). imPROVE was built from iterative stakeholder feedback and supports the collection and use of patient-reported outcomes data in clinical care. The platform is composed of two parts 1) a patient-facing mobile application that is loaded with resources about breast cancer surgery and treatment and links to breast cancer communities; and 2) a clinician-facing dashboard with graphic displays and actionable insights about individual patient PROM data. In June 2021, imPROVE was implemented within the Division of Plastic and Reconstructive Surgery at Brigham and Women’s Hospital and the Breast Oncology Program at Dana-Farber Cancer Institute. To date, we’ve successfully enrolled over 600 patients with breast cancer across four clinical sites and 16 clinicians (9 surgeons, six physician associates, one nurse practitioner). imPROVE has been widely accepted by patients and clinicians.

Clinical Implications
Routine collection of patient-reported outcome measures (PROMs) to support the transition towards a patient-centered healthcare model can inform care delivery. Existing PROM collection technologies are limited by their user interface and functionalities. imPROVE to address these barriers to PROMs collection.

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